Prevalence

 

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  • Work package 4 Prevalence: Cohorts, Epidemiology and Registration Network

    Broad aim:
    To improve knowledge on dementia prevalence and the exposure of individuals living with dementia to psychotropic drugs.

    Operational objectives:
    1. Assessment of available epidemiological studies on dementia prevalence in relation with Eurocode results and recommendations generated by other European organisations (EADC).
    2. Investigation of the possibility of collecting data on early cognitive deficiencies (Share, EHES, etc…).
    3. Assessment of national information systems other than epidemiological registries or studies.
    4. Assessment of the exposure of individuals living with dementia to psychotropic drugs.
    • Instituto Superiori di Sanità. ISS. Italy: Workpackage Leader
    • Terveyden ja Hyvinvoinnin Laitos. THL. Finland>
    • Haute Autorité de Santé. HAS, France.
    • Institut National de la Santé et de la Recherche Médicale. INSERM, France
    • Karolinska Institute. IK. Sweden.
    • Athens Association of Alzheimer´s Diseasese and Related Disorders. AAADRD. Greece
    • Ministerio della Salute. MINSAL. Italy
    • Collaborating partners: ISCIII, Spain and NIU SAV, Slovakia.

  • Milestone Expected Ending Month Other partners involved
    Publication of systematic review of available population studies on dementia September 2012 IK, THL, HAS, ISS
    Publication of survey on available data on health &social cares for the exposure to psychotropic drugs in people with dementia September 2012 INSERM, NIU SAV, HAS, ISS
    Publication of survey on available data on health and social care services for all other information in people with dementia March 2013 AAADRD, MINSAL, ISCIII, HAS, ISS
    Main Deliverable
    Recommendations to improve epidemiological data on AD & dementia w/ overview data & def. of best practices for data collection March 2013

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